Specimen received in laboratory

(Condition screened for) declined

Declined, no history of being screened

Declined, screened in UK (as reported by parents) with no evidence of result

Declined, screened outside UK with evidence of result

Declined, screened outside UK with no evidence of result

(Condition screened for) Repeat/Further sample required

Too soon after transfusion (less than 72 hours)

Insufficient sample

Unsuitable sample (blood quality): incorrect blood application

Unsuitable sample (blood quality): compressed/damaged

Unsuitable sample: day 0 and day 5 on same card

Unsuitable sample for CF: possible faecal contamination

Unsuitable sample: NHS number missing/not accurately recorded

Unsuitable sample: Date of sample missing/not accurately recorded

Unsuitable sample: Date of birth not accurately matched

Unsuitable sample: Expired card used

Unsuitable sample: > 14 days in transit, too old for analysis

Unsuitable sample: Damaged in transit

Sickle - Too premature for testing

CHT - Pre-term

CHT - Borderline result

CF - Inconclusive

(Condition screened for) Not suspected

(Condition screened for) Carrier

Sickle Cell Disease not suspected, carrier of other haemoglobin

Result consistent with haemoglobin D carrier

Result consistent with haemoglobin E carrier

Result consistent with haemoglobin O-Arab carrier

(Condition screened for) Not suspected, other disorders follow up

(Condition screened for) Suspected

(Condition screened for) Not screened/screen ing incomplete

CF: > 8 weeks, too old for screening

All screens: >1 year, too old for screening

Moved out of area

Not contactable, reasonable efforts made

Baby died

Not required, previous valid result

Haemoglobin S not suspected (by DNA) No other haemoglobin/thalassemia excluded